I am home after a very long day. The bone pain from last night's Neupogen shot really escalated on the drive to Indianapolis. I had gotten the chest x-ray and sputum sample delivered this morning before I left for Indianapolis (to see the infectious disease specialist).
The infectious disease doctor is concerned. He said there is a hazy patch on my right lung. He sent me to the hospital (in Indy) for additional labwork to check for CMV, Aspirgillus, Crypto-something, and HHV-6 - all concerns in the lungs of an immunocompromised patient. He is on call through the weekend but will be away next week (as is my trusted family doctor).
He expressed his similar concern that the NIH expressed - making the decision to undergo the transplant and its related risks or not transplant and have an infection kill me.
SO, I really need for this to resolve and be something simple to correct. If any of these tests ordered today by my Infectious Disease Doctor return positive, it will be a very serious matter. Most likely, I would have to go elsewhere to be treated for any of these . I am having difficulty breathing tonight - it is difficult to determine if it is from the lung congestion or from the very low hemoglobin (8.7). I had zero neutrophils last night on my lab report.
Please pray!
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