I notified the leukemia specialist at Ohio State that I had decided against enrollment in the Revlimid clinical trial. After much prayer and deliberation, I did not have peace about this treatment option. My husband and family did not support that recommendation either. And my trusted local physicians were quite concerned about the multiple risks associated with this drug.
I did not know how well the OSU team would accept my decision, however, I received an e-mail from my doctor late last night. He asked that I return to OSU at the end of September and we will discuss more conventional (versus experimental) treatments. I am thankful that they are willing to listen to the desires of their patients.
In the meantime, I am trying to coordinate with the University of Washington researcher and begin treatment with the Chinese protocol that he has been investigating. I know I need to do something. This has been a difficult summer. I have lost 40 pounds without trying and had multiple, serious infections (and hospitalizations). I am in need of a blood transfusion right now and may need to resort to use of oxygen at home. I want neither of these to transpire, but am asking the Lord to reverse these latest complications. He is able.
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