This morning, I returned to my infusion chair at the cancer center following a brief 4-week hiatus. I must admit after spending so many days here since June, that my body preferred to stay home, burrowed in my blankets. I am receiving IVIG today (all day treatment that supports my immune function).
I am a bit concerned as I was very confused when I awoke. My pills are always sorted out in one of those pill containers. Pills are sorted by day and meal. For the life of me, I could not determine which pills to take. I stood there looking at the pills, as forlorn and puzzled as if I was solving a trigonometry problem.
Finally, I thought I had the mystery unraveled and took my pills. Awhile later, I looked and I had taken Tuesday's lunch pills. Duh. There is a true phenomenon known as Chemo-Brain. I might be a victim of that! At least I arrived this morning with clothes on and didn't forget my laptop. The brain hasn't totally misfired.
Tomorrow I return to the Infectious Disease doctor in Indianapolis who is helping us to treat and diagnose these fungal and bacterial infections. I did not obey his order a couple of weeks ago to switch my antifungal. I did not have any peace in my spirit, so I assumed it was not in God's plan fir me. He wanted me to try Voriconzaole. It has many risks, hallucinations being one of them. I just couldn't picture myself watching Lil Man while hallucinating. Also, there are serious cardiac concerns with that medication. I hope he will not fire me as a patient for insubordination.
On November 9th, I return to see an ENT specialist in Indianapolis with the same hope of resolving these fungal infections since have been present since January. I am very blessed that they have not spread as that is the life-threatening risk these type of infections pose.
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