Tomorrow, I will return for my all day IVIG treatment. This is the treatment that helps to support my immune system. And Heaven knows, with H1N1 at pandemic levels, I need all of the protection that I can obtain! A fellow CLL patient died this week from H1N1. This was a very sobering report to learn of and a vivid reminder of how dangerous H1N1 is to immunocompromised leukemia patients. Please pray that all goes well tomorrow.
I completed 10 days of Neupogen on November 14th. By November 16th, I was neutropenic once again (low infection fighting cells). Everyday, I was having to go to the cancer center for these expensive injections. Thus, daily exposing me to germs on the journey. After many telephone calls and another miracle by my insurance angel, the injections were approved for at-home use. Now, Kevin gives me the injections at home. When we went to pick the medication up at the pharmacy, the bill for 10 injections was $4,034. Currently, they are working well and I am not neutropenic.
I have had a cough now for 8 days. My lungs were "raspy" on Wednesday when I saw my doctor. We are keeping a close eye on this as I do not need pneumonia right now (or ever!)
The only other new development is increased pain concerns. I have coped with pain from several sources for sometime now. Fighting diligently, I have wanted to avoid narcotic pain medications and other medications with risks. Chronic, daily pain is very tiring to me. I am wearing multiple pain patches and receiving little benefit. Acupuncture takes the edge off of my pain, however, with all of the flu in the community, I have not been able to go out to the office for my weekly acupuncture.
Your continued prayers are treasured.
1 comment:
I love you and am praying for you! I so admire the strength you show as you go through all these challenges. God is shining through you my friend!!!!!
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